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Steph’s Two Girls

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Blog - Steph’s Two Girls


PDA (Pathological Demand Avoidance) is, according to the National Autistic Society, a lifelong disability.
The central difficulty for people with PDA is their avoidance of the everyday demands made by other people, due to their high anxiety levels when they feel that they are not in control. Hence the name of the syndrome: pathological demand avoidance. People with PDA tend to have much better social communication and interaction skills than other people on the spectrum, and are consequently able to use this ability to their advantage. They still have real difficulties in these areas though, usually because they need to control the interaction. They often have highly developed social mimicry and role play, sometimes becoming different characters or personas.

Get to know me:

I started this blog after a visit to the paediatrician with our younger daughter (Sasha, aged 2 years and 7 months at the time). The visit produced some shock news that she could be diagnosed with autism. She had delayed speech but at the time we didn’t suspect it was anything unusual.

Autism is a hidden disability. Autism is not a bad word, but something that is still rarely talked about despite the recorded increase in diagnosis. Some people who I mentioned our diagnosis to said ‘oh yes, I’ve seen a television programme on autism, but Sasha’s nothing like that’. Well, no, she’s not severly autistic, but it’s a wide spectrum and affects each individual in a different way.

I know there are a lot of people out there with bigger challenges in life and I have no idea how they cope. I’m just grateful that I have support from good family and friends, and that we have two beautiful girls who make us laugh (and sometimes cry!) in different ways every day. After being asked several hundred questions in the early days, it brought home to me how easy it is to forget about things that happened in the past. My intention was to have this blog as a kind of diary going forward to remind us what happened when. Blogging became slightly addictive and so it has turned into my general family ramblings, but with a big Special Needs theme.


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