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Life with an Autistic Son

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Blog - Life with an Autistic Son


From time to time I stumble across blog posts that are brilliantly written, inspirational and offer a perceptive insight into the world of autism. In other words, blog posts that I wish I'd written myself! I want to share these posts.

Get to know me:

The “Help! Parent Manual” published by NAS, has a section advising parents to produce a profile for school. The idea is that it can be posted in the staffroom and given to those working with your child. We put the information below on a single sheet of paper with a photo of our son and his name at the top. At the bottom we put the name of his class teacher and teaching assistants. I’d like to think it is of use to the school. And if it isn’t, then at least it does nothing to dent our reputation as pushy parents!

My favourite things are:
Music and dancing
Computers, gadgets and games
Physical contact and messing with moles and elbows of grown ups
Play Doh, Moonsand and other modelling materials
Running, jumping, climbing, playing
TV and radio
Arts and crafts
My brother A (Year 2, Mrs X)
Theme parks, roller coasters and rides
Playing with adults
Being able to wander
Lots of praise, including stickers

Things I dislike are:
sitting still
some noises or sounds, shouting or crying
sharing/ taking turns
eye contact
the words no and naughty

Things I find difficult to understand:
long questions and instructions
why I can’t have some things
why I have to wait

The best way to keep my attention is:
Ask me to look at you and praise me when I do (but don’t expect me to keep looking!)

To help me learn and keep me focussed:
Give me very clear, unambiguous instructions
Ask me one thing at a time
Give me some processing time
Keep me away from distracting things
Use symbols and PECS cards
Use a visual timetable

You can tell I am getting stressed if:
I make a moaning noise
I try to run away
I make a beatbox noise (but sometimes this means I am happy!)
I scream or cry

If I do get stressed:
Take me to a quiet, safe place
Distract me with something I like

I will need help with:
Sitting for a long time
Expressing what I want, think or need
Dressing and undressing


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